Hayley Okines Died

hayley-okines-with-kylie-minogue

Hayley Okines Died- Is Hayley Okines dead? There are unconfirmed internet rumors saying that Hayley Okines died. Hayley Okines is a girl who suffers from an extremely rare genetic condition called Hutchinson Gilford Progeria Syndrome, also known as HGPS or Progeria. At present there are 53 known cases of Progeria around the world and only 2 in the UK, where they live.

Progeria is a progressive terminal condition which mimics many of the characteristics of the normal aging process, but faster…a lot faster…about 8 times faster in fact! A 10 year old progeria child will have the appearance of an octogenerian with symptoms including baldness, arthritis and heart problems…but with the mind of a 10 year old! The average lifespan of children with Progeria is about 13 and at present there is no cure.

Watch Hayley Okines video after the jump.

httpv://www.youtube.com/watch?v=Ye8-gns0NzE

Hayley Okines
parents create a website to educate, inform and most importantly raise awareness of this little known disease. When Hayley was diagnosed with Progeria in 1999 they had never heard of it, nor did any of their friends or family. With the help of the internet they were able to build an understanding of Progeria as well as finding organizations and individuals that can help them.

You may visit her website http://www.hayleyspage.com/ for more details and please donate to the cause!